Self Portrait with Feeding Tube, Raleigh, North Carolina, November 2020
I’ve been reading up on Diane Arbus recently. She’s someone I’ve always known about but never really taken to; there’s something off-putting about her work that makes me queasy when I look at it. It bothers me. I don’t think it’s because of the common criticism of her – she’s “exploiting” her subjects for her benefit; we, by definition, “exploit” the people we photograph – so much as what it says about her. Her daughter, Doon Arbus, in her postscript to the posthumous publication entitled Untitled, claimed her mom “wasn’t interested in self-expression,” which is a stunning misunderstanding coming from someone who should know better.
As William Todd Schultz argues in his fascinating ‘psychobiography’ of Arbus, An Emergency in Slow Motion: The Inner Life of Diane Arbus, Arbus’s work was all about herself, her externalization of an inner world produced by individual trauma. I recommend Schultz’s book to anyone interested in understanding the artistic process and what creates and nurtures it. From what I can see, Arbus had one fucked-up internal life. Maybe it explains why she took her own life at 47. Insofar as any work of art can be ‘explained,’ it explains it, or, at the least, puts it into a context that helps open up a dialogue with the artist and enhances the experience of the work itself. It’s made me rethink her work as something she wanted to tell me.
All of this is prelude to the fact that I’ve been contemplating documenting my recent medical experiences and putting them out there for you. You could read that as objective documentation or shameless self-absorption, depending on how you feel about what motivates these ‘documentary’ desires. What’s so special about me and my experience? Nothing. That doesn’t mean it isn’t my experience, and it doesn’t necessarily preclude me from sharing it with you in a way that might – just might – mirror to you your own experience in some way. It can easily lapse into vulgarity, become a cheap attempt for attention or sympathy, but I’ll assume the risk. Frankly, the attention doesn’t interest me at all. When I started Leicaphilia years ago I did so with the intention of remaining anonymous, and I kept it that way for a number of years. But as time passed, and readership sorted itself out, I gradually engaged the blog to discuss more personal things, which seems more in the spirit of what I do as a ‘documentarian.’ Isn’t that the function of ‘documentary’ photography? The alternative is pictures of cats and fence posts.
Checking in for Chemo
So, as regular readers know, I’m currently in the process of beating cancer or having it beat me. Stage Three Stomach Cancer. Nothing more traumatic than what millions of people experience every day for any number of reasons. Actually, I’m tempted at times to see my current travails as a blessing, a pedagogy about life, its value, and maybe even its meaning [I’m still unsure about the latter]. But it’s occurred to me that it would make a potentially interesting photo essay, and Leicaphilia gives me a platform to present it. So, that’s what I’m going to do, among all the usual things, going forward. Or, at least it’s what I’ve chosen to do today.
All of the photos below were of my chemo visit yesterday. Today I’m home, hooked up to some Frankensteinian device pumping poison into my system for two more days, after which I get monitored to see if my white blood cells are falling dangerously low and potentially necessitating another hospital stay. Luckily, my oncology doc tells me I’ve apparently got a very strong immune system. My white blood cell counts remain normal after chemo. As such, I don’t require the $8000 shot usually given to people after each chemo round. $8000 each shot, money upfront. That’s $64000 out of pocket for 8 rounds, not covered by any insurance I possess. When they scheduled me for it and explained the cost, I laughed. Right, like that’s gonna happen. America health care – all I can do is shake my head.